coaching for sales/medical/marketing to interact with patient organization and patients. human to human communication for a better patient understanding. coaching and moderator for patient organization to interact with pharmacutical industry independent and effective for both sites. Vita: 48 years experience as patient with a rare and deadly disease called "alpha1 antitrypsin deficiencies". diagnosed in the age of 6 month. over the years and based on the numerous prognosis regarding my lifespan, I worked out my own way to deal with my disease and my expectation of life. so far I managed my career without any problems and sickness absence, but with great success and verve. thinking positive and future-oriented. summing up, I am confident, that my experience and my job history would be an asset to pharmaceutical companies, patients, patient organisation, KOL and hospitals. experience: • building and developing a close cooperation with the patient organisations in europe. • responsible for donations and sponsoring for non-profit organisations in europe. including tracking and transparency guideline and cooperation with the compliance department of the company. • development of requirements profiles and patients profiles by several indications. • interface between patients, patient organisations and the company. • supportive role in the area of marketing, market access, government and public affairs. • developing and supporting of multiple awareness campaigns for patient organisations in europe. • participation in patient events, information events in europe • participation in eurodis/rare disease events in europe and us • support of the care projects. developing the conceptual formulation of the patient care program. supportive role considering the homepage, contents, coaching of external service providers when dealing with patients (call center and agencies), coordination of the cooperation with the patient organisation.